“The doctor would like
to see you without the dog,” said the retina specialist’s technician in the
waiting room in a suburban Chicago hospital. I had arrived for an examination
and a procedure that may or may not save the failing sight in my right eye. My
service dog had accompanied me.
When, a month before
that appointment, age-related macular degeneration (AMD) in my right eye was
diagnosed by an ophthalmologist in Upper Michigan, I was naturally upset. I
have been totally deaf for 74 of my 77 years. Becoming blind as well would send
me paddleless up a dark branch of shit creek.
The Michigan
specialist injected a drug into the eye to slow down the disease and handed me
off to a new ophthalmologist in Illinois, where we spend our winters, with a
recommendation for a second injection in a few weeks. Now my wife Debby, my dog
Trooper—a fuzzy little schnoodle—and I were back home, and it was time for the
second jab.
The Chicago
technician’s words shocked Debby, who had accompanied me with Trooper to the
appointment.
“That is illegal,” she
said. “The ADA says that a service dog cannot be separated from the person he
serves.”
She spoke the truth.
The rules of the Americans with Disabilities Act give me the right to take
Trooper just about everywhere, including doctor’s offices as well as restaurants,
movie theaters, buses and trains. By law a service dog is an item of medical
equipment, not a pet. Trooper, who alerts me to sounds, is an extension of
myself, just as a prosthesis would be for a legless person. Over the almost two
years we have been together, we have visited many doctors without incident.
The tech disappeared.
After a few minutes he
returned and said, “The doctor is afraid of dogs.”
“Fear of dogs,” I
said, “does not trump a service dog handler’s legal right to medical services.”
I knew the doctor
spoke a Southwest Asian language as well as English, and speculated that she
might be an immigrant—and possibly have a religious rather than psychological
aversion to dogs. But that wasn’t for me to judge.
The tech disappeared
again.
After ten or fifteen
minutes we were ushered into an examining room, followed by a hospital
administrator who spoke with a foreign accent that was difficult to lipread.
“The doctor is very afraid
of dogs,” she said.
“Henry is a deaf man
losing his vision,” Debby said. “This office has to step up!”
The administrator
tried to broker a compromise. What If Debby took Trooper out of the room while
the retina specialist examined me?
“I communicate by
reading lips,” I said. “I have never met this doctor and have no idea if I
would be able to lipread her easily.”
“I’ll interpret for
you,” the administrator said.
“I can barely
understand you,” I said. (She also had a hard time with my breathy
deaf speech.) “I need my wife with me to help me understand what’s going on.
And the dog must be with either of
us.”
This administrator,
despite projecting a calm and reasonable mien, clearly knew little about deaf
people. She didn’t offer the services of a sign language interpreter—which
would have been useless, since I don’t know sign. She also just could not grasp
that being blind and deaf was a potential calamity, let alone that I needed to
be fully informed of every detail of the examination and the ensuing procedure.
Much to-and-froing
ensued.
I quickly realized
that digging my heels in and demanding that the doctor swallow her fears to
give me that vital injection would probably be counterproductive. If she really had
a fear of dogs, her hand likely would be shaky, and that is not an ideal
condition for a jab in the eyeball.
But I saw a way out,
even though the clueless administrator couldn’t. I knew that there was another
retina specialist—let’s call her Dr. X—in the same practice, at another
location. If an appointment could be arranged that week with her, I told the
administrator, that would solve the problem with the eye, if not with the dog.
“I’ll have to see if
she’s afraid of dogs,” the administrator said.
I stifled a sharp
retort, and she left the room.
When she returned, she
was smiling. “It will be okay,” she said. “Dr. X is not afraid of dogs and will
be able to see you Friday.”
That subsequent visit
with Dr. X went very well indeed. She is extraordinarily lipreadable. She
thought Trooper was adorable and Trooper thought she was adorable. He lay
calmly next to Debby in a corner of the examining room while the medical
providers went about their business.
In fact, the entire
reception we received at this branch of the medical practice was so lovely that
I thought advance word had come down from an apprehensive hospital management
to treat the deaf guy and his service dog with kid gloves. I was offered the
services of a sign interpreter, but I declined with thanks. Sometimes a little
infamy helps.
What’s more, Dr. X
thought the condition of my right eye’s macula, the center of the retina, was
so good that I did not need an injection this time. She thinks it is possible
that I may not have AMD in that eye at all. It could be a random event, she
said, in which tiny blood vessels in the retina burst and caused an opaque
smudge in my vision. That’s because the affected area is not dead center in my
sight, as is usual with AMD, but slightly below and off to the right. My vision
in that eye is still 20/20 (with glasses).
So there is hope. My
next evaluation is in a month. We’ll be keeping an eye, so to speak, on the
condition. Also, I’ll continue with a diet heavy on spinach (which I
fortunately like) and other veggies reputedly beneficial to eye health. I’ll
also keep taking a daily capsule of vitamins that some studies say help the eye
and some studies say make no difference. Better to err on the side of caution,
said Dr. X. I have no problem with that.
A subsequent
consultation with a daughter-in-law who is a trained medical ethicist persuaded
me that the doctor with a fear of dogs—if that is what it was—has rights, too.
In some situations, canine aversion can be a debilitating psychological
condition—indeed, a disability.
It’s not necessary to
declare that one person’s rights under the law are more important than those of
the other. It’s better, morally and ethically, to try to find an alternative
solution. That is what I had unwittingly happened upon when I thought of Dr. X.
These events taught me
another important lesson: When making an appointment with a new medical
provider, I should always announce that I will be accompanied by a service dog.
That is not legally required. It’s just good practical sense.
Can you research other specialists in the meantime? You need the injection, Trooper needs to be there, the MD needs to be accepting.
ReplyDeleteI await your follow up. This is unacceptable, fear of dogs notwithstanding.
ReplyDeleteSo glad that it worked out.
ReplyDeleteHenry,
ReplyDeleteI came to your blog after reading your article about a hotel's ignorance of the ADA, in the magazine of Dogs for Better Living (formerly Dogs for the Deaf). Good for you and your wife for not being intimidated. Polite interactions, firmness, and positive alternatives, have a lot of strength. And I hope that the doctor without fear of dogs, was right in her diagnosis of your problem in one eye and not AMD. Best wishes to you both and Trooper!